European Reference Networks A success story for patients living with a rare disease

In this booklet, we provide an overview of the 24 ERNs and celebrate their achievements to the rare disease agenda, to actively communicate on the Commission’s actions and decisions and explain the benefits and opportunities stemming from our work. The overall outlook emerging from reading this booklet is the clear EU-added value that these Networks provide to help patients with rare diseases and their families and the effort that the Commission is making to increase the awareness of the European Reference Networks’ activities.

Source: op.europa.eu